Showing posts with label healthcare blogs. Show all posts
Showing posts with label healthcare blogs. Show all posts

Monday, November 29, 2010

Citizen Journalism: Why I Blog on Healthcare Informatics

I am teaching my current students about alternate media, a.k.a. citizen journalism, also known as "blogging", in a course on organizational and social aspects of healthcare informatics.

I am using a (de-identified) personal experience as an example of why alternate media is valuable in getting "inconvenient" memes into circulation.

In addition to recent articles such as "The Problems with Peer Review" (in the British Medical Journal by Mark Henderson, Science Editor, the Times, London. BMJ 2010;340:c1409), "Ghostwriting at Elite Academic Medical Centers in the United States" (LaCasse & Leo, PLoS Medicine, February 2010, Volume 7, Issue 2) and others about ghostwriting and other ills affecting the conventional biomedical literature, I provided my students the personal example below.

I thought the example might be interesting to blog readers as well.

Here is the example I used with my students:

Regarding a paper I wrote a few years ago and that I ultimately simply posted on Scribd, "Remediating an Unintended Consequence of Healthcare IT: A Dearth of Data on Unintended Consequences of Healthcare IT" (link), an anonymous peer reviewer had this to say when I submitted it to "journal XYZ":

Comments to the Author

This paper addresses a potentially important issue but adds little that is new or that goes beyond what a reader might find in a major city newspaper. Proposing a classification of sources of UC and analysis of reasons for undereporting of each type in the resulting classification could be a useful addition to the field.

This was certainly an ironic if not bizarre comment. A paper on a scarcity of data on unintended consequences of health IT due to a "closed culture" in the HIT industry does not add anything new "beyond what one might find in a major city newspaper?"

Unfortunately, the anonymous peer review process does not allow me to ask what newspaper this reviewer reads, but it was clear to me this reviewer was 1) attempting to prevent the paper's publication and 2) "moving the goalposts" to delay it or have the focus on scarcity removed by seeking for me to "propose a classification of sources of UC" (tangential or even irrelevant to the paper's topic).

I felt it likely the review of a revised paper by this reviewer would have led to negative comments on any proposed classification schema.

Worse, was this, in a dialog via several emails I've condensed for readability. It is very likely it came from the same reviewer above:

EDITOR OF JOURNAL XYZ: I suggest Scot that you modify this into an editorial. One reviewer recognized the writing and asked me if this may have been pre-published on a blog. Any possibility for that?

In other words, I was being accused by the anonymous reviewer of possibly violating the ethics of journal publication and the contract I signed to not pre-publish (the journal has exclusive rights).

My response:

SS: No, this work was entirely original, written from a clean slate, and was not pre-published on a blog. I would think the reviewers would know me better than that in terms of integrity.

The editor shot back:

EDITOR: My response as well. Good - looking forward to the edits. Happy snow day

I reminded the editor:

SS: Not to mention the extensive footnotes showing where I sourced my material. In an age of search engines, I have to ask the following:

- was the person who raised this concern so technologically limited they were unable to search themselves to answer their own question?
- did this person have such a lack of trust they felt compelled to make such a statement?
- did this person raise this due to bias against the fundamental thesis of the paper?

I think it's fair to say there is very, very strong pushback against articles such as this being published. I have to consider whether it's worth my while to continue, or to withdraw the paper.

At which point I received the following revealing comment from the editor:

EDITOR: I think, Scot, that you have a talent for sniffing out problems, dangers, risk, failures and by addressing them in your head on ways, you are likely to make enemies. You are doing a valuable job, but you have to realize that people are threatened by you. That's why the respond in this manner. Not that it is excusable, but it is understandable.

I decided it was not worth revising the paper due to that reviewer's comments and the editor's observations, and therefore disseminated the paper via the Healthcare Renewal blog and Scribd.

(I note that "making enemies" by directly confronting possible risks of a new technology in healthcare suggests skewed priorities among those so affected.)

While I believe the current Wikileaks web exposures have gone insanely too far, as those incidents involved exposure of sensitive material held illegally that could people to be harmed, damage international relations, and cause other unforeseen ill effects, the web has proven valuable for dissemination of one's ideas that have not been able to escape the gravity of the sometimes "peer review Black Hole."

-- SS

Thursday, October 08, 2009

Healthcare Renewal Named a Forbes "Must Read" Health Blog

Healthcare Renewal has been named a Forbes "must read" health blog, one of three under the category "physician blogs."

"These Web sites cover the many facets of health with integrity and authority--in a more useful, personal way" writes Forbes journalist and health reporter Rebecca Ruiz on Oct. 7 (link to article, page 1 and page 2).

-- SS

Friday, October 13, 2006

New Blogs Adding to the Discussion

I just wanted to note a few newish blogs that have been discussing some issues of possible interest to Health Care Renewal readers. I will be soon adding them to our blog-roll. Here they are in alphabetical order.

The Antidote: Counterspin for Health Care and Health News seems to be doing what the title suggests. Some interesting recent posts include a counterpoint to Tyler Cowen's praise for innovation in the US health care system (sorry, Tyler), and some interesting discussions of health care quality issues.

Clinical Psychology and Psychiatry: A Closer Look has been taking a fresh and skeptical look at what has been going on in this particularly embattled area of health care. See in particular recent posts on whether atypical anti-psychotic drugs work for Alzheimer's disease, an ironic follow-up on the Blumsohn - Procter & Gamble - Sheffield University case, and the new BMJ article suggesting how industry funded meta-analyses may be biased.

Running a Hospital focusses on, surprise, hospital issues. What really is a surprise is the identity of the blogger, Paul Levy, the CEO of the Beth Israel Deaconess Medical Center in Boston. I have to tip my figurative hat to a hospital system CEO with the courage to blog with comments enabled. Furthermore, Mr Levy is willing to take on some controversial issues, and to do so without lapsing into health care management-speak. (See in particular his post on concierge medical practices.) Let's see if any other CEOs of large health care organizations will follow his lead.

Monday, July 17, 2006

MedPundit is Back Too

And now MedPundit is back too. Every day things get better and better in every possible way. Could Healthy Policy be next?

Monday, July 10, 2006

Aubrey Blumsohn Joins the Blogsphere

We have posted several times (most recently here, with links backward) about the story of Dr Aubrey Blumsohn's dispute with Proctor and Gamble (P&G) and Sheffield University in the UK. In summary, Blumsohn and Professor Richard Eastell had done clinical research on the risedronate (Actonel), sponsored by P&G, the drug's manufacturer. P&G refused Blumsohn access to the original data from the study he was ostensibly running, and hired a ghost-writer to write abstracts in his name. Blumsohn protested to Eastell, who advised him not to make waves because P&G "is a good source of income" for the university. When protests to other university officials produced no results, Blumsohn told the story to the press, whereupon the university suspended him.

Dr Blumsohn has now joined the blogsphere. His effort is entitled the "Scientific Misconduct Blog." Based on his upclose and personal experience with concentration and abuse of power in health care, I'm sure he will have some interesting and perceptive things to say. Stay tuned.